Family-to-Family Health Information Centers: Helping Families of Children & Youth with Special Health Care Needs (CYSHCN) & the Professionals who Serve Them

Family Voices
April 11, 2019
This report provides data on how Family-to-Family Health Information Centers support families of children and youth with special health care needs.
A group of adults and children

Family-to-Family Health Information Centers (F2Fs) are family-led centers that provide support to families of children and youth with special health care needs (CYSHCN). The Health Resources and Services Administration has funded F2Fs in each state and the District of Columbia since 2009. This data report provides information on how FDFs help families, such as finding appropriate care and services and identifying community support programs. The report also explains why families of CYSHCN need support, examines the diverse racial and ethnic backgrounds of families of CYSHCN, and details the type of information that F2Fs provide.

In addition to supporting families, F2Fs work with health care professionals, hospitals, and public agencies to help them better meet the needs of CYSHCN and their families. At the time of publication of this report, F2Fs had received and addressed 160,785 requests from professionals working with families of CYSHCN.

How Family-to-Family Health Information Centers (F2Fs) Help Providers and Systems

  • Obtaining help for a patient/family
  • Learning about family experiences
  • Providing skill-building opportunities to help providers improve their ability to partner with families
  • Partnering to address changes to state policies, programs, practices, and services
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